Pray For Rosie

25Jan/115

Update – 1/24/11

This time last year my family was blanketed in prayer from family, friends, church family, and complete strangers. I can't believe it has been a year, a whole year. The personality of my wife is sorely missed, but her presence is lovingly embraced. Rosie is continuing her physical therapies twice a day, her monthly check ups, and sees her specialty doctor at TIRR in the medical center bi-monthly. Rosie has come off of 4 of her medications since coming home. After a detailed analysis and testing the doctors and I agree it is both safest and comforting for Rosie to retain her trach. Our hope is as she improves we can revisit her need of having one. As far as her progression of recognition and communication it is still about the same. I have contacted Dr. Harch's offices in Louisianna and am still contemplating the potential benefits of hyperbaric oxygen therapy. Her vision has not been restored, but I promise you she could hear a pin drop. Rosie's hair is getting so long, it's almost shoulder length. Rosie still receives infrequent visits from friends, family, and co-workers and always seems to respond with wide eyed intent focus and big smiles. Now to the chicken that rules the roost, Emily. Fatherhood certainly has its challenges and despite popular myth having your inlaws next door certainly has its perks. Emily wakes me every morning as she stands up, leans over her crib, and lets out a big DA-DA. She started walking about two weeks ago and has just celebrated her 1st birthday. I will post new pics of Emily as she has changed so much over the year. I apologize for not updating sooner as I know many of you are still in prayer for Rosie and check this site. January 19, 2010 the night before delivery, I believed that God's sovereignty was incomparable, undeniable, and irrefutable, to put it simply He didn't make mistakes. One year later I stand by that belief, God is able to do all things, but He is not obligated to do anything. As you lift up prayers for Rosie, my prayer for you is that you consider the sovereignty of God, the work and love of Jesus Christ, He suffered so that Rosie's suffering would merely be temporal, ofcourse not hers alone but all who claim Him as Lord and Savior.

God Bless.......

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22Apr/102

Update – 4/22

Today Rosie had a CT scan performed and the neurologist discovered that the swollen ventricles in her brain are about the same size as they were prior to her shunt surgery. This is a good thing because that means we truly haven't seen whether or not the shunt will improve any of her faculties. Her neurologist will set a date next week to re caliberate the shunt to allow the fluid to drip quicker through her system.

Her therapist are in agreement that she seems to be tracking by sound better than before. Rosie has also had her trach changed which seems to bring her more comfort......

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21Apr/103

Update – 4/21

I finally had the opportunity to speak with Rosie's doctor today about where we go from here. There are a few possible options we may pursue that are all contingent on the other. First Rosie will get a CT scan this week to see if the shunt is working properly or if it needs to be re-calibrated so that it will work properly. Most patients who receive a shunt have immediate results; unfortunately I have not noticed any changes in Rosie. Rosie will receive botox shots in her arms to help with the spasticity, possibly a baclofen pump in her spine to help with the spasticity in her feet, and/or surgery to her achilles tendon to loosen the contraction in case the baclofen medicine doesn't work. There will be a day trial of the baclofen medicine before a surgery is ordered for a pump just to make sure the medication works and she doesn't have any adverse reaction to it. Rosie should have her trach changed this week as well as have a few medications changed to see if she reacts better during her daily therapies.

I have noticed that Rosie will smirk at certain things I do and even slightly smile, although we are still uncertain whether or not Rosie can see or what all she understands. I believe she gets better day by day, but only time will tell. Injuries such as Rosie's require undetermined amounts of time for the brain to mysteriously and incredibly find a way to restore itself. Rosie is scheduled to finally come home on May 15th, however that day may change based on the paths we choose from the before mentioned surgeries.

Emily is doing well, she finally turned all the way over from her back to her stomach all by herself. I have had ample help from family making sure she is well taken care of and extremely loved upon. Thank all of you for continued thoughts and prayer........God Bless

 

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14Apr/102

Update – 4/14

Please pray for Rosa and Tony this morning. She is scheduled to have her surgery today at Memorial Hermann. Recovery will take approximately 3 days, and then she will be transferred back to TIRR. I will update this post when I receive more information.

Update - 5:30: Just got word from Tony that everything went well so praise God for that! Please pray that Rosa's recovery will go just as well.

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11Apr/104

Update – 4/11

I know I will probably fail to find the adequate words to express our deepest gratitude, but I shall try nonetheless. Rosie, Emily, and I have truly been blessed by our friends, community, and even kind hearted strangers. In a time of our lives where we have experienced our highest highs, we have also experienced our lowest lows. We have been encouraged daily by your thoughts, prayers, and participation in Rosie’s benefit. We would just like to first thank Team Rosa, Made Ya Smile, Monster Jam, First Baptist Needville, Firetron, Drillin and Grillin, Blue Moon Signs, the dozens of kind folks who donated silent auction items, Stafford Fire Department, Jumping Jacks, all the volunteers, and of course those who came out to make this benefit such a success, thank you… thank you….. thank you….

Rosie’s surgery has been rescheduled for the morning of Wednesday the 14th. Today we went outside as we do most days that are nice and Rosie got to visit with Miss Emily Grace for about 30 minutes before she went back home with grandma.

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